Sunday, September 7, 2014

Holding Temodar Treatments

Steve's blood platelet levels have been too low to take his Temodar. His first round of labs had platelets even lower at 81,000. Terry sent me the following:

Here you go 9/4/14 Blood work for Steve WBC 4.9 RBC 4.75 Hemoglobin 15.7 Hematocrit 45 Platelets 88,000 Creatinine 1.1 BUN 16 Next Appointment, Avastin and blood work 9/12

He had his Avastin treatment about a week ago. It went well without any side effects, just taking up the morning. They saw a substitute doctor instead of Dr. Hu who was very optimistic about how much longer folks are living with glioblastoma and how many new treatments and options are available.

I got to spend last weekend with them. It's always great to see them and enjoy their home and hospitality. We had planned a quiet day since we didn't know how well Steve would feel right after his second Avastin treatment. We talked and relaxed and barbecued. I noticed more word-finding problems than when I had last seen him. I wonder if that was left over from when he had the flu. Terry was going to mention it to Dr. Hu when he came back from his vacation and will see them on the twelfth.

Terry and our sister Lesley spent yesterday at a seminar on Outsmarting Brain Tumors at Cedars-Sinai. They found some of it basic but they also learned some new information, especially about immuno-therapies and vaccines. Cedars has made the information available to all of us via the magic of the internet, for those of you who may want more information :)


A talk about nutrition:


And another link they liked about someone named Chad at Chad's Blog is http://thebrainchancery.com