Wednesday, December 7, 2011

Big Brother and Pathology Report

Greg is our big brother. Like many eldest children, he is very assertive and capable and smart and we think he's better than most. Steve has been leaning on Greg to help him through this obstacle course, especially when Steve was having headaches and losing his language skills he asked Greg to help him out.

Greg has been making phone calls and now has second opinions scheduled at UCLA and City of Hope. Greg has found names of people to help or are specially skilled, like a surgeon at Kaiser who has a reputation for good brain surgery. Terry has now made an appointment with him, Dr. Pikul.

Terry e-mailed the pathology report to us. FINAL PATHOLOGIC DIAGNOSIS
A AND B. BRAIN, BIOPSY, LEFT TEMPORAL: GLIOBLASTOMA (WHO GRADE IV) WITH FOCAL SMALL CELL COMPONENT. There it is in writing. Glioblastoma. Yuck to you, glioblastoma!

I talked to Steve this afternoon. He's feeling pretty good with minimal headaches and a not too upset stomach. He says he was devastated by last night's news about the tumor being grade four and couldn't sleep last night. He was trying to be more optimistic today. He said he walked the dog and ate healthy food. He was e-mailing work to see if he could work some half days and not mess up his disability or insurance status. He was planning to go to Nathan's concert tonight. Nathan will be wearing a tuxedo for choir at the Holiday show. I bet he'll look really sharp. I'm looking forward to photos of it. Steve didn't seem to have any word finding difficulties while we talked. Maybe that symptom will be mostly gone  now. I sure hope so.

There are no appointments scheduled for Steve this week. City of Hope will review his case via his records on Friday. How can he have days and weeks with nothing going on when time is so urgent?

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